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    Updated
    2
    Apr
    2013
    7:50pm, EDT

    White House pitches brain mapping project

    President Obama has proposed $100 million in federal funding to start an exhaustive brain mapping initiative. NBC's Robert Bazell reports.

    By Maggie Fox, Senior Writer, NBC News

    President Obama pitched a human brain research initiative on Tuesday that he likened to the Human Genome Project to map all the human DNA, and said it will not only help find cures for diseases such as Alzheimer’s and autism, but create jobs and drive economic growth.

    Obama proposed $100 million in federal funding to kick start the Brain Research through Advancing Innovative Neurotechnologies or BRAIN Initiative.

    “Imagine if we could reverse traumatic brain injury and PTSD for our wounded veterans coming home,” Obama said at an event unveiling the initiative at the White House.

    He said federal investment in basic research had led to completely unexpected inventions, from the Internet to GPS technology. “The Apollo project that put man on the moon gave us, eventually, CAT scans,” Obama said.

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    He said the Human Genome Project, completed in 2003, had paid $140 for every dollar invested.

    “As humans we can identify galaxies light-years away, study particles smaller than an atom but we still haven’t unlocked the mystery of the 3 pounds of matter than sits between our ears,” Obama said.

    "Ideas are what power our economy. It’s what sets us apart. It’s what America has been all about," he added.

    "We have been a nation of dreamers and risk-takers; people who see what nobody else sees sooner than anybody else sees it.  We do innovation better than anybody else -- and that makes our economy stronger. When we invest in the best ideas before anybody else does, our businesses and our workers can make the best products and deliver the best services before anybody else."

    Obama said he’ll send the proposal to Congress next week as part of his budget request. Although Congress is working to slash the federal deficit, House Majority Leader Eric Cantor signalled an early willingness to pay for this one.

    “Mapping the human brain is exactly the type of research we should be funding, by reprioritizing the $250 million we currently spend on political and social science research into expanded medical research, including the expedited mapping of the human brain. It's great science,” Cantor said in a statement.

    It's not clear just what the initiative will do. Obama and collins said they'd appointed a "dream team" of experts to lay out the agenda -- they should report back before the end of the summer. They are led by neurobiologists Cori Bargmann of Rockefeller University and William Newsome of Stanford University.

    Allen Institute for Brain Research

    The brain's "emotion center", the amygdala, is highlighted in this 3-D representation of the human brain from the Allen Human Brain Atlas.

    “Investing in biomedical research is one of the wisest choices we can make as a nation,” National Institutes of Health director Dr. Francis Collins told the gathering. “The United States has been at the forefront of one medical breakthrough after another.”

    The public-private initiative, with money from groups such as the Howard Hughes Medical Institute and Microsoft co-founder Paul Allen's brain mapping project, aims to find a way to take pictures of the brain in action in real time.

    The $100 million funding will come from the National Institutes of Health, the Defense Advanced Research Projects Agency and the National Science Foundation, the White House said.

    “We want to understand the brain to know how we reason, how we memorize, how we learn, how we move, how our emotions work. These abilities define us, yet we hardly understand any of it," said Miyoung Chun, vice president of science programs at The Kavli Foundation, which is taking part in the initiative and which funds basic research in neuroscience and physics.

    The project has some big money and some big science to build on. Allen pumped another $300 million into his institute's brain mapping initiative a year ago, and has published freely available maps of the human and mouse brains. The Howard Hughes Medical Institute built a whole research campus devoted to brain science, called Janelia Farm, in Virginia.

    Arati Prabhakar, director of the Defense Advanced Research Projects Agency (DARPA) pointed to a project that allowed a quadriplegic woman to control a robot arm with her thoughts alone.

    "There is nothing like a project to inspire people to go to that next level," Collins told a telephone briefing.

    Not everybody is happy about a centralized, administration-led project. Michael Eisen, a biologist at the University of California at Berkeley, said earlier this year that grand projects in biology such as Project ENCODE for DNA analysis were emerging as the "greatest threat" to individual discovery-driven science.

    "It's one thing to fund neuroscience, another to have a centralized 10-year project to 'solve the brain,'" Eisen wrote in a Twitter update in February.

    President Barack Obama announces a new research initiative that he hopes will advance understanding of the human mind and will help revive middle class job growth.

     

    Related:

    • How researchers shaped the White House's brain-mapping initiative
    • Atlas aims to solve mysteries of the human brain
    • Institute unveils mouse brain map

    This story was originally published on Tue Apr 2, 2013 6:00 AM EDT

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  • 7
    Nov
    2012
    5:08am, EST

    One big winner in Tuesday's vote: health reform

    President Barack Obama gives a victory speech Tuesday after being elected to a second term in the White House.

    By Maggie Fox, Senior Writer, NBC News

    One of the biggest winners Tuesday night was health reform. Now that President Barack Obama has won a second term and kept a Democratic majority in the Senate to back him up, Republicans have lost any chance at repealing his biggest domestic initiative.

    “Health reform goes ahead,” Timothy Jost, an expert on health law at Washington and Lee University, told NBC news. “It has survived two near-death experiences, with the Supreme Court decision (in June) and now with the election. Now it is time to move forward.”

    For most Americans who get their health insurance through their employers, that could mean some significant changes as they are asked to make more and more of their own decisions about how coverage they want.

    Republican analysts agree. “What it means is implementation of the law,” said Christopher Condeluci, a former Tax and Benefits Counsel to the Senate Finance Committee who is now at Washington law firm Venable LLP.

    It doesn’t mean smooth sailing, however. Many rules have yet to be rolled out – and there is little time to do that before the law begins to take full effect in 2014.

    Much of the law’s implementation is up to the states. And Republicans still control the House, which means they hold the initiative on setting the budget. As they’ve done over the past four years, they can hold the budget hostage. And this year the administration and Congress will have to negotiate on an especially tricky budget issue – the fiscal cliff.

    Now that he's won, the six splitting headaches waiting for Obama

    Unless Congress makes a budget deal fast, $600 billion in tax increases and spending cuts - known as the fiscal cliff – go into effect in January. Some of the money used to fund the health care law will undoubtedly be on the table for the last-minute bargaining. The Congressional Budget Office has projected the law will cost about $1.2 billion over 10 years.

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    “I would expect that Republicans are going to push pretty hard to get some money out of the Affordable Care Act,” Jost said. “There is a lot of money there,” Condeluci agreed.

    Some parts supposedly cannot be touched – the money to be used to subsidize health insurance for people who want to buy it on the new marker provided by health insurance exchanges, for instance. People who earn up to 400 percent of the federal poverty level, or about $92,000 for a family of four, would be able to get a subsidy and conservatives may want to bargain against some of this money to try and cut the federal deficit.

    And the federal government has promised to pay the full cost of expanding Medicaid in the states for the first few years. It’s not clear how much this will cost until states choose what to do. The Supreme Court ruling that upheld the health care law in June made it clear that states get to decide whether they’ll offer Medicaid to more people. Congress may want to try to negotiate against that money, also.

    But Harry Conaway, who heads the Washington office of consulting group Mercer, notes that budget projections show the Affordable Care Act will save money over 10 years, so it may be risky to play with it too much.

    Victorious Obama 'more determined' in face of challenges

    States that have refused to set up their own health insurance exchanges can expect the federal government to do it for them. But it now has just under a year to get that done.

    “The administration has a mountain to climb,” Condeluci said. “There are a lot of rules that it appears that they slow-walked until after the election. I understand why they did slow-walk those rules. Those rules are related to some very, very important parts of this law.”

    One rule everyone is waiting for is the so-called essential benefits package -- the list of minimum requirements for plans to cover.

    Condeluci worries that the process will be rushed now, which may not allow for proper consideration of public comments on administration proposals.

    “We haven’t seen the rules on the federally facilitated (health insurance) exchange. We don’t even know if will be up and running by open enrollment, which is October 2013,” Condeluci said.

    Conaway thinks the administration may have to delay some of the deadlines. "The Obama administration will have to make an assessment later this year or early next year about whether a 2014 implementation will go smoothly or be chaotic and disruptive," he said.

    Slideshow: Election 2012

    Kevin Lamarque / Reuters

    Campaigning with Mitt Romney and Barack Obama, voting and election results.

    Launch slideshow

    What it means for you

    Mercer's Tracy Watts says employers are already beginning to make changes to what they offer workers. "Over the next several years everybody will continue to see changes to their benefits," she said. More people may see bare-bones plans, because of changes in the rules about how much employers have to cover.

    The 2010 health care law actually lowers the average actuarial value for a plan -- the percentage of the total bill that an employer has to cover. On average, a health insurance plan now pays for about 85 percent of the costs, with the patient making up 15 percent. The health reform law says plans only have to pay 60 percent -- meaning some people may end up being on the hook for 40 percent of their costs with a new, slimmed-down plan.

    "Let's say  you have an outpatient procedure that costs $3,000," Watts said. A new-style plan might require a $2,000 deductible and 50 percent co-insurance, meaning the patient has to pay $2,500 for the procedure and the employer picks up $500. But, she adds, employees will have the option to add better coverage a la carte. The difference is the employers will no longer simply offer a single package -- people will have to work out what particular pieces of coverage they want, and pay a little more each month for the extras.

    Watts says Mercer's surveys show that 90 percent of employers who currently offer health insurance to their workers will continue to do so.

    Another Supreme Court challenge?
    Rules that insurers are waiting to see include the community rating requirements — these are the different premiums that insurers may charge people based on their sex, age and health status. For instance, the law aims to stop the common practice of insurers charging women more than they charge men of similar age and health status. But they will be able to charge people higher premiums as they get older, and just how much more needs to be laid out.

    There’s also the guaranteed issue rule – this will require insurers to cover people even if they have existing health conditions. Again, this isn’t detailed yet.

    And then there are the states. Many Republican governors are already resisting some of the most important aspects of healthcare reform, such as expanding Medicaid to cover people who can’t easily get health insurance any other way.

    “At this point it really comes down to the states,” Condeluci said. “The biggest bogey out there is what the states are going to do. We could have a situation where states continue to resist implementing the law.’

    That, Condeluci predicts, could even create another Supreme Court challenge to the law.

    GOP presidential nominee Mitt Romney gives his concession speech Tuesday after President Barack Obama was declared the winner of the 2012 presidential race.

    “Dare I say it -- if their resistance continues, we will have a federalism issue where a federal law is essentially telling a state to do something and the state is saying ‘no’ to that federal law. Arguably, that would have to be decided by the Supreme Court.”

    Jost is a little more hopeful. “I think we will see states move toward a more cooperative and less confrontational relationship,” he said. “One hopes that at some time, people are going to act practically rather than ideologically.”

    There could also still be friction over the law’s requirements that insurers and employers provide birth control coverage free of charge to women. Conservative employers continue to challenge the requirement in court.

    Lisa Maatz, policy director for the American Association of University Women, thinks that issue galvanized many women voters – especially when some conservatives framed the issue as one of religious freedom as opposed to women’s health.

    “The conversation itself was not only disheartening, but it also shook women down to their toes,” Maatz told NBC News. “It was an eye-opener for younger women who never believed such rights could be taken away, and a galvanizer for older women as well.”

    Related links:

    • State elections key to health reform
    • Free birth control starts under health care law
    • Who falls through the cracks when states don't expand Medicaid
    • Much left to do on health reform
    • Supreme Court upholds health care law

    More election coverage from NBCNews.com:

    • Obama wins re-election; Ohio, Iowa, Wisconsin prove pivotal
    • Democrats gain in Senate with wins in four states
    • Rape remarks sink two Republican Senate hopefuls
    • In costliest-ever Senate race, Warren beats Brown for Mass. seat
    • Maine's Harley-riding King vowed to 'shake up' D.C.
    • Republicans to maintain control of House, NBC News projects
    • Colorado, Washington approve recreational marijuana use
    • In 11 governor races, it's about jobs and taxes
    • Majority of voters see American on wrong track

    Follow NBC Politics on Twitter and Facebook

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  • 3
    Nov
    2012
    8:28am, EDT

    From Texas to Vermont, state elections decide health care's future

    Eric Kayne / for NBC News

    Brandi DeFrank's son Gabriel, 3 months old, is covered under Medicaid, but the program's coverage for the Texas mom herself ended when she gave birth.

    By Maggie Fox, Senior Writer, NBC News

    As Mitt Romney and President Barack Obama pack in some last-minute campaigning before Tuesday’s election, polls show voters are split just about down the middle on who they prefer: Romney, who has promised to do everything he can do repeal the 2010 health reform law, and Obama, who says its benefits are just beginning to take hold.

    But while the presidential race gets most of the attention, the choices voters make to fill governor’s mansions and state legislatures may have just as big an effect on what kind of health coverage they will have in coming years.

    That’s in part because the Affordable Care Act sets it up that way, but even more so because the Supreme Court says it’s up to states to decide whether and how to expand the Medicaid health insurance plan for the poor.

    “One thing the voters should be aware of is what are their governors are going to be doing. Will more people have access to Medicaid or access to a state-run exchange?” says John Poelman of healthcare consulting firm Leavitt Partners and a former health policy analyst at the Department of Health and Human Services.

    Two states at the two extremes of health care coverage are Texas, with a free-market, bare-bones approach, and Vermont, which is unabashedly going for a European-style, government-supported system.

    Brandi DeFrank is one of the 6.3 million people in Texas who lack health insurance. That's a quarter of the state's population and the highest percentage of uninsured people in the country.

    Like millions of women across the country, DeFrank, 20, was fully covered under Medicaid, the state-federal health insurance plan for low-income people, while she was pregnant. The birth of her 3-month-old son, Gabriel, was also covered, but after that, her own coverage ended. The baby remains on Medicaid -- all states make some provision for children whose parents lack insurance -- but now DeFrank is on her own and gambling that she won’t get sick.

    Under federal law, DeFrank could have been covered under her parents’ health insurance. But when she moved out at 18, her father said she had to learn to be an adult.

    “He took me off his insurance,” said DeFrank as she cradled Gabriel in a cheerful playroom at Legacy Community Health Services, a non-profit health clinic in southwest Houston where Gabriel gets care. Her husband, who is working as an intern at a medical clinic, is also not covered, says DeFrank, who is about to begin applying to nursing school.

    “I didn’t really think about Medicaid or anything. You’re just thinking about college,” she added. “I saved all my money for books.”

    'We're not going to be a part of socializing health care'
    Texas governor Rick Perry, a Republican, has said he won’t expand Medicaid to cover people like DeFrank, and the Republican-dominated Texas legislature backed him in turning down $76 billion in federal matching funds that would have helped pay to do it over the first five years.

    “We’re just not going to be a part of … socializing health care in the state of Texas,” Perry told reporters in July.

    But in Vermont, Gov. Peter Shumlin, a Democrat, and the current legislature are pushing hard for a single-payer system that they say will give them the leverage to lower prices and provide better care for everyone in the state. But they’re not there yet and the election will decide if the state will continue to go in that direction, or whether it will be forced to roll back.

    The state’s current continuum of programs asks patients to pay at least a minimum premium if they can. They include Catamount Health, a state plan providing subsidies for some people, along with Blue Cross Blue Shield of Vermont; Vermont Health Access Plan, which provides insurance for people who have gone without for a year or more; Dr. Dynasaur; Medicaid, and pharmacy assistance and premium assistance programs.

    On Tuesday, residents will go to the polls to decide whether to keep pushing more, towards government-directed health care plan that covers everyone, paid for by taxes.

    That’s what Anna Gebhardt would like to see happen. Even though Vermont offers more coverage options for low-income families than some other states, she and her husband, Oliver, don’t have insurance. Their jobs don’t offer coverage, they can’t afford to buy a private policy and, since Oliver got a raise a few months ago at his job as an audio engineer, they earn too much money to qualify for Medicaid. Their children, Leviah, 6, and Immanuel, 13, are covered under the state’s Dr. Dynasaur program, which offers low-cost coverage for kids, but the family struggles to make the payments for it.

    Two weeks ago, Gebhardt, a 33-year-old preschool teacher, was sitting nervously in a Burlington, Vt., emergency room after Leviah fell down at school. When the girl was still crying hours later, her mother took her in. It wasn’t an easy decision. Gebhardt was not entirely sure she was paid up on Anna’s health insurance premium under the Dr. Dynasaur program.

    “My fingers were crossed and I was thinking ‘Did I pay the bill last month?’” said Gebhardt. “Two other people had to come over and help make sure we were covered before we could even see a doctor. This gives you a lot of anxiety when you have a child who is crying and in pain,” Gebhardt said. Luckily, she had paid and Leviah was just just fine.

    DeFrank and Gebhardt are just the type of people that Democrats want to reach with expanded health care, subsidized by the government if needed. And they’re just the type of people that Republicans say could buy their own insurance if the government would just let the free market take over.

    The 2010 Affordable Care Act was designed to transform health care in the United States, which most experts agree currently costs too much and leaves far too many people without health insurance. The Affordable Care Act calls for states to set up insurance exchanges, where people who don’t have health insurance through an employer or through government programs can go and buy a plan -- with government subsidies, if they need them.

    It also was meant to provide more care to people who can’t buy insurance by forcing states to expand Medicaid. The hope was to add about 16 million of the poorest people to the rolls -- about half of those who need health insurance. But after a series of challenges to the law, the U.S. Supreme Court ruled in June that the Medicaid expansion requirement went too far. While most of the Affordable Care Act was constitutional, the court ruled, the federal government could not force states to offer Medicaid to more people.

    'They can disrupt implementation of the law'
    So now two of the biggest provisions of the law -- offering Medicaid to more people and setting up the health exchanges -- are in the hands of state officials.

    “They can disrupt implementation of the law. Leadership can either be aggressively moving it forward or impeding it,” Poelman says.

    The Obama administration is offering to pay the full cost of expanding Medicaid at first, but lawmakers in states like Texas say they can barely afford Medicaid now, let alone when they’ll have to start kicking in 7 percent for all those extra people in 2019.

    This frustrates Garnet Coleman, a Democrat in the Texas legislature who represents much of Houston’s poor downtown. Coleman says not only would expanding Medicaid save money in the long run, by getting people treated earlier, it would create much-needed jobs. “Health care is a growth sector,” Coleman says. It will create “beaucoup jobs -- good jobs, as your mama would say.” Jobs that people can get with two-year degrees. “This is just a boost in the arm to the state of Texas,” he says.

    Coleman is delighted that Perry and the legislature are balking on setting up an exchange for Texas and looks forward to seeing what the federal government will do instead. The 2010 health reform law says that if states don’t set up their own exchanges by 2014, HHS will do it for them.

    Different paths to the same goal
    It’s not that Democrats want health care and Republicans don’t. Both sides agree in principle that it’s better for everyone to have health insurance of some kind.  It’s cheaper to treat disease or injuries early, and best to prevent disease in the first place. People are more likely to get vaccinated and to take medications such as blood pressure drugs if they’re seeing a doctor regularly.

    The Obama administration says the way to get there is with subsidies and government oversight, with a healthy marketplace allowing private health insurers to offer more to those who can pay -- and strict regulation to make sure insurance companies don’t cherry-pick the healthiest customers or dump patients just when they need insurance the most.

    Republicans argue that freeing up the marketplace would do that more efficiently. They say that government regulations make it impossible for insurers and health care providers to compete enough to bring costs down.

    “No one says it’s better to leave people out,” says Joel Ario, former director of health insurance exchanges at HHS, who is now at law and consulting firm Manatt Phelps & Phillips. “It is just a question of what we can afford or not afford.” It’s also a question of who can best make those decisions – states or the federal government.

    “With exchanges, the question is whether the federal government should have a heavy hand in making them work,” Ario added.

    In Texas, polls suggest the Republicans will dominate. This likely means Texas will continue to offer a bare minimum of health care and will let the federal government set up its health exchanges.

    “There are states referred to as ‘Hell, no states’,” said David Smith, an analyst at Leavitt, the healthcare consulting firm. “A lot of those states don’t necessarily have governors who are up for election.” In those states, voters have to decide whether to help governors by electing members of the same party to the state house.

    In Vermont, Shumlin’s Republican opponent, Randy Brock, says single-payer health care is too expensive. Vermont’s legislature will take up the question of how to pay for it in January, with options including a capital gains tax or a tax on employers.

    Where other states stand
    Republican governors like Iowa’s Terry Branstad, Arizona's Jan Brewer, Sam Brownback of Kansas, Louisiana’s Bobby Jindal, Nebraska’s Dave Heineman, Nikki Haley of South Carolina and Scott Walker of Wisconsin say they have no intention of expanding Medicaid. Florida’s Rick Scott says he won’t expand Medicaid even though his state has the second-highest rate of uninsured adults, after Texas.

    Leavitt’s team predicts the majority of state governors -- at least 30 -- will be Republican after the election. Eleven states will be electing governors, and eight of them have Democrats in office now.

    States that are safe for Democrats include Maryland, where Gov. Martin O'Malley was one of the first governors to move on health reform. Oregon governor John Kitzhaber also makes health reform a central policy.

    Next door in Washington state, health care is playing a big role in making the race tight, with Democrat Jay Inslee, an eight-term congressman from Seattle, battling the Republican state attorney general Rob McKenna. Inslee supported the health law in Congress; McKenna isn’t against expansion but he thinks Medicaid patients should share some of the costs. 

    In Indiana’s race, Republican congressman Mike Pence has said he wouldn’t set up a state insurance exchange. His Democratic opponent John Gregg hasn’t endorsed the health reform law, either, but has met with current governor Mitch Daniels about how Indiana should move forward on building a health insurance exchange.

    Alabama, Florida, Montana and Wyoming have ballot measures asking residents whether they want to block the mandate requiring people to get health insurance. Missouri voters are being asked to decide whether to allow the governor to establish health insurance exchanges.

    While they wait to see what happens, Gebhardt and her husband, Oliver, are gambling that they won’t get sick and need medical care.

    “We are constantly at the whim of decisions being made by people who don’t depend on those services and don’t realize how their decisions affect people,” Gebhardt said. “We are constantly in limbo. We could create a system where efficiency works for the people and for the budget. That is where Vermont can lead the way.”

    Related stories:

    • Falling through the cracks if states don't expand Medicaid
    • U.S. health care: It's officially a mess, institute says

     

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  • 10
    Feb
    2012
    2:04pm, EST

    Opinion: Obama birth control policy compromise ignores patients

    By Art Caplan, Ph.D.

    What determines coverage in your health insurance plan?

    You might think it ought to be based on proven evidence about what works and what does not. If you are a real optimist, you might think coverage is shaped by what patients need and what their doctors think will work. Wrong. In America, insurance coverage is driven by religion and politics.

    When it comes to your health care, it's as if you're being told to find a theologian, not a doctor. That is the frightening lesson of the battle over contraceptive coverage.

    President Barack Obama threw the Catholic Bishops and Cardinals a smoke-and-mirrors bone Friday on the issue of whether to require religious-affiliated institutions to cover birth control for their employees. Under his revamped plan, religious hospitals and universities employers who see providing birth control as a violation of their faith don't have to pay for it, but if their employees want it they can call a secret hotline to an insurance company who will give them the coverage by amortizing the cost into the price of other services.

    The bottom line is, by granting an accommodation on this issue the President shows he can listen, count, remember. But it also should make you nervous that he and his opponents are perfectly willing to ignore what patients say they want and what works in deciding what you can get from a doctor, hospital, nursing home or clinic.

    The Obama administration clearly heard Republicans gin up the issue of contraceptive coverage as one more example of the alleged war the administration is waging on religion and did not like the sound of it. Obama can count because -- rightly or not -- he does not want to risk losing votes over this issue. And his decision shows he can remember because the Catholic Church, commendably, helped him get health reform done and he knows he owes them for their help.

    What the President, and all the politicians who piled into the kerfuffle over contraception, have shown is that when it comes to figuring out what we should pay for in health care, ignoring evidence and need is just fine.

    This does not bode well for the future of health policy as our society ages and costs inevitably escalate. Today it is contraception that has been put out to pasture purely for non-medical reasons. Yesterday, it was not paying for doctors to talk to their patients about end of life care. Tomorrow, it will be covering treatments derived from the use of cells obtained from embryos -- or something equally morally controversial.

    Too bad. Americans deserve health care that is in line with their needs, not what religious leaders or politicians diagnose.

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    More from Art Caplan:

    Catholic Bishops' birth control stance harms employees

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Maggie Fox, Senior Writer, NBC News

Senior health writer for NBCNews.com. With 20 years experience reporting on health, science, medicine and technology, Maggie now specializes in writing health stories that the average reader can understand. Former global health and science editor, Reuters, who established an award-winning and agenda-setting science and health file for the news agency.

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Art Caplan, Ph.D., is the head of the division of medical ethics at the NYU Langone Medical Center. He's a regular contributor to msnbc.com and the author or editor of 29 books and over 500 journal publications.

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